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Supplements to Sickle Cell Disease Newborn Screening Follow-up Program Recipients (HRSA-21-036)

---
identifier: "/us/fr/2023-17805"
source: "fr"
legal_status: "authoritative_unofficial"
title: "Supplements to Sickle Cell Disease Newborn Screening Follow-up Program Recipients (HRSA-21-036)"
title_number: 0
title_name: "Federal Register"
section_number: "2023-17805"
section_name: "Supplements to Sickle Cell Disease Newborn Screening Follow-up Program Recipients (HRSA-21-036)"
positive_law: false
currency: "2023-08-18"
last_updated: "2023-08-18"
format_version: "1.1.0"
generator: "[email protected]"
agency: "Health and Human Services Department"
document_number: "2023-17805"
document_type: "notice"
publication_date: "2023-08-18"
agencies:
  - "Health and Human Services Department"
  - "Health Resources and Services Administration"
fr_citation: "88 FR 56639"
fr_volume: 88
fr_action: "Notice of supplemental awards."
---

#  Supplements to Sickle Cell Disease Newborn Screening Follow-up Program Recipients (HRSA-21-036)

**AGENCY:**

Health Resources and Services Administration (HRSA), Department of Health and Human Services.

**ACTION:**

Notice of supplemental awards.

**SUMMARY:**

HRSA will provide supplemental award funds to all 25 Sickle Cell Disease (SCD) Newborn Screening (NBS) Follow-up Program  (FP) grantees for $56,000 each for fiscal year 2023. The funds will support in-scope grant activities related to health care services, increasing access to medical and social support services, and conducting outreach to help connect individuals living with SCD to follow-up care.

**FOR FURTHER INFORMATION CONTACT:**

Hakim Fobia, Public Health Analyst and Project Officer, Genetic Services Branch, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau (MCHB), HRSA, at *[email protected]* or (301) 945-9842.

**SUPPLEMENTARY INFORMATION:**

*Intended Recipients of the Award:* 25 SCD NBS FP recipients as listed in Table 1.

*Amount of Non-Competitive Awards:* 25 awards at $56,000 (total: $1,400,000).

*Project Period:* September 1, 2023, to August 31, 2024.

*CFDA Number:* 93.110.

*Award Instrument:* Supplement.

*Authority:* 42 U.S.C. 701(a)(2) (§ 501(a)(2) of the Social Security Act).

| Grant No. | Award recipient name | City, state | Award amount |
| --- | --- | --- | --- |
| D1J42466 | Sickle Cell Disease Association of Illinois | Chicago, IL | $56,000 |
| D1J42474 | Hemostasis and Thrombosis Center of Nevada | Las Vegas, NV | 56,000 |
| D1J42475 | Ohio Sickle Cell & Health Association, Inc | Columbus, OH | 56,000 |
| D1J42467 | Martin Center, Inc. | Indianapolis, IN | 56,000 |
| D1JMC42468 | Baton Rouge Sickle Cell Anemia Foundation, Inc | Baton Rouge, LA | 56,000 |
| D1JMC42463 | Cayenne Wellness Center and Children's Foundation, Inc. | Burbank, CA | 56,000 |
| D1JMC42472 | Children's Sickle Cell Foundation Inc | Pittsburgh, PA | 56,000 |
| D1JMC42473 | Clark, James R Memorial Sickle Cell Foundation | Columbia, SC | 56,000 |
| D1JMC42471 | Piedmont Health Services and Sickle Cell Agency | Greensboro, NC | 56,000 |
| D1JMC42476 | Sickle Cell Anemia Foundation of Oregon, Inc. | Portland, OR | 56,000 |
| D1JMC42470 | Sickle Cell Association | Florissant, MO | 56,000 |
| D1JMC42477 | The Sickle Cell Association Of New Jersey, Inc. | Newark, NJ | 56,000 |
| D1JMC42469 | Sickle Cell Disease Association of America Michigan Chapter Inc | Detroit, MI | 56,000 |
| D1JMC42478 | Sickle Cell Disease Association of America Philadelphia—Delaware Valley Chapter | Philadelphia, PA | 56,000 |
| D1JMC42462 | Sickle Cell Foundation of Arizona, Inc. | Vail, AZ | 56,000 |
| D1JMC42465 | Sickle Cell Foundation of Georgia, Inc. | Atlanta, GA | 56,000 |
| D1JMC42479 | Sickle Cell Texas Marc Thomas Foundation | Austin, TX | 56,000 |
| D1JMC42480 | Sickle Cell/Thalassemia Patients Networks, Inc. | Brooklyn, NY | 56,000 |
| D1JMC42481 | Supporters of Families with Sickle Cell Disease, Incorporated | Tulsa, OK | 56,000 |
| D1JMC42464 | University of Miami | Miami, FL | 56,000 |
| D1JMC46837 | Sickle Cell Disease Foundation | Ontario, CA | 56,000 |
| D1JMC46836 | Sickle Cell Disease Association of America Mobile Chapter | Mobile, AL | 56,000 |
| D1JMC46834 | Crescent Foundation, Inc. | Philadelphia, PA | 56,000 |
| D1JMC46835 | Metropolitan Seattle Sickle Cell Task Force | Seattle, WA | 56,000 |
| D1JMC46838 | Sickle Cell Foundation of Tennessee | Memphis, TN | 56,000 |

*Justification:* The Consolidated Appropriations Act, 2023 (Pub. L. 117-328) provided MCHB with additional appropriations for the Sickle Cell Disease Newborn Screening Follow-up Program. The Program currently funds 25 community-based organizations to facilitate access to quality SCD care. MCHB will provide a supplement of $56,000 to each of the 25 existing grantees, as outlined in Table 1. Funds will support in-scope grant activities related to health care services, increasing access to medical and social support services, and conducting outreach to help connect individuals living with SCD to follow up care.

Carole Johnson,

Administrator.