# Sickle Cell Disease Newborn Screening Follow-Up Program
**AGENCY:**
Health Resources and Services Administration (HRSA), Department of Health and Human Services.
**ACTION:**
Notice of Supplemental awards.
**SUMMARY:**
HRSA will provide $65,500 in supplemental award funds to each of the 25 Sickle Cell Disease (SCD) Newborn Screening Follow-Up Program (NBS FP) grantees under HRSA-21-036 in fiscal year (FY) 2025, totaling $1,637,500. The FY 2025 supplemental funds will support grant activities that are in scope of program goals and objectives. The supplemental funding can support activities related to: increasing access to medical and support services, particularly during the pediatric to adult transition period; improving data systems; increasing workforce training and knowledge; expanding quality improvement projects; or conducting outreach to help identify individuals living with SCD who have been lost to follow-up. These activities will strengthen the linkage of individuals with SCD to appropriate and ongoing care to improve health outcomes.
**FOR FURTHER INFORMATION CONTACT:**
Hakim Fobia, Public Health Analyst and Project Officer, Genetic Services Branch, Division of Services for Children with Special Health Needs, HRSA, at *[email protected]* or 301-945-9842.
**SUPPLEMENTARY INFORMATION:**
*Intended Recipients of the Award:* 25 SCD NBS FP recipients listed in Table 1.
*Amount of Non-Competitive Awards:* 25 awards at $65,500 (total: $1,637,500).
*Project Period:* September 1, 2021, to August 31, 2026.
*Assistance Listing Number:* 93.110.
*Award Instrument:* Non-competitive supplement.
*Authority:* 42 U.S.C. 701(a)(2) (§ 501(a)(2) of the Social Security Act).
| Grant No. | Award recipient name | City, state | Award |
| --- | --- | --- | --- |
| D1JMC42466 | Sickle Cell Disease Association of Illinois | Chicago, IL | $65,500 |
| D1JMC42474 | Hemostasis and Thrombosis Center of Nevada | Las Vegas, NV | 65,500 |
| D1JMC42475 | Ohio Sickle Cell & Health Association, Inc | Columbus, OH | 65,500 |
| D1JMC42467 | Martin Center, Inc | Indianapolis, IN | 65,500 |
| D1JMC42468 | Baton Rouge Sickle Cell Anemia Foundation, Inc | Baton Rouge, LA | 65,500 |
| D1JMC42463 | Cayenne Wellness Center and Children's Foundation, Inc | Burbank, CA | 65,500 |
| D1JMC42472 | Children's Sickle Cell Foundation, Inc | Pittsburgh, PA | 65,500 |
| D1JMC42473 | James R. Clark Memorial Sickle Cell Foundation | Columbia, SC | 65,500 |
| D1JMC42471 | Piedmont Health Services and Sickle Cell Agency | Greensboro, NC | 65,500 |
| D1JMC42476 | Sickle Cell Anemia Foundation of Oregon, Inc | Portland, OR | 65,500 |
| D1JMC42470 | Sickle Cell Association | Florissant, MO | 65,500 |
| D1JMC42477 | The Sickle Cell Association of New Jersey, Inc | Newark, NJ | 65,500 |
| D1JMC42469 | Sickle Cell Disease Association of America Michigan Chapter, Inc | Detroit, MI | 65,500 |
| D1JMC42478 | Sickle Cell Disease Association of America Philadelphia-Delaware Valley Chapter | Philadelphia, PA | 65,500 |
| D1JMC42462 | Sickle Cell Foundation of Arizona, Inc | Vail, AZ | 65,500 |
| D1JMC42465 | Sickle Cell Foundation of Georgia, Inc | Atlanta, GA | 65,500 |
| D1JMC42479 | Sickle Cell Association of Texas Marc Thomas Foundation | Austin, TX | 65,500 |
| D1JMC42480 | Sickle Cell/Thalassemia Patients Networks, Inc | Brooklyn, NY | 65,500 |
| D1JMC42481 | Supporters of Families with Sickle Cell Disease, Inc | Tulsa, OK | 65,500 |
| D1JMC42464 | University of Miami | Miami, FL | 65,500 |
| D1JMC46837 | Sickle Cell Disease Foundation | Ontario, CA | 65,500 |
| D1JMC46836 | Sickle Cell Disease Association of America Mobile Chapter | Mobile, AL | 65,500 |
| D1JMC46834 | Crescent Foundation, Inc. | Philadelphia, PA | 65,500 |
| D1JMC46835 | Metropolitan Seattle Sickle Cell Task Force | Seattle, WA | 65,500 |
| D1JMC46838 | Sickle Cell Foundation of Tennessee | Memphis, TN | 65,500 |
*Justification:* In year 4 of 5 of this program, funding is being made available for FY 2025 to 25 current funding recipients under HRSA-21-036 to facilitate access to quality SCD care by conducting outreach and working with individuals living with SCD and families from the time a newborn screen identifies a child with possible SCD through diagnosis, treatment, and follow-up across the lifespan. Such funding helps bridge access to services by supporting community-based organizations in reaching individuals in the communities where they reside and providing a critical link to health care and other social services to improve the lives of individuals living with SCD. SCD NBS FP grantees will use the supplemental funding to improve appropriate health care and social services utilization by targeting direct and indirect barriers to accessing health care such as transition support, social service linkage, data system development, workforce educational support and training, expanding quality improvement projects, and other services. The above activities are within the scope of the NBS FP program as described in HRSA-21-036.
Thomas J. Engels,
Administrator.